Guestbook & E-mail Directory
Please sign the Guestbook, or ask for a cyber-penfriend.
If you're under 18, please check with your parents before replying to any e-mails you receive from people you don't know. Don't arrange to meet up with people who e-mail you - some people may not be who they say they are! (Don't tell anyone your telephone number or home address either!) If you'd like to ask a question - then please do so in the Discussion Forum If you like to listen to Music whilst you browse - Click Here
(Dates are in american format - months first!)
| 11/25/01 10:54:37 PM | |
| What is your name? | Barbara |
| Where are you from? | Durham |
| Would you like a cyber-penfriend? | Yes |
| If so, and you're under 20, how old are you? | |
| Your message | I have an 8 year old son with TS, ADHD, OCD and Dyspraxia plus a few other things the Drs haven't got round to naming yet. He is very loving in nature,his tics change and vary, he takes medication.Anyone out there with similar situation or opinion or advice ? |
| 11/25/01 05:34:27 PM | |
| What is your name? | anne |
| Where are you from? | nottingham uk |
| Would you like a cyber-penfriend? | no |
| If so, and you're under 20, how old are you? | |
| Your message | i have to go through my friend as i have no internet access,but i would love to know if there are any support groups/other parents or carers in the nottingham area,or surrounding areas.I am finding it terribly hard to cope with my 10 year old sons tourettes & mood swings.I would be grateful for any information.....thank you ..anne |
| 11/07/01 03:02:44 AM | |
| What is your name? | Ascher Nathan |
| Where are you from? | Leeds |
| Would you like a cyber-penfriend? | no |
| If so, and you're under 20, how old are you? | |
| Your message | Hello. I am a final year student at Leeds University studying BA Sociology. My final year dissertation is a sociological study of Tourette Syndrome. As I am not a sufferer, nor do I know anyone who suffers from it, I would really like some information of lifestyles, and in particular issues to do with social inclusion. I understand that this is a sensitive issue but if anyone is willing to help with my research then please would you email me and let me know. Thanks.... |
| 10/16/01 12:34:03 AM | |
| What is your name? | Vallentin |
| Where are you from? | Denmark |
| Would you like a cyber-penfriend? | |
| If so, and you're under 20, how old are you? | 17 |
| Your message | Hi Tony. I hope you read this. I found you on this page, you are 16, I think. I try'd to email you, but it isnt posible for me, because my computer isnt able do take "short cut's", so I couldnt get your email addy. If you still are interested in having an email-friend with TS, then send me an email at; [email protected] Hope to hear from you. ~Vallentin |
| 10/14/01 06:59:52 PM | |
| What is your name? | maarten pass� |
| Where are you from? | holland |
| Would you like a cyber-penfriend? | no |
| If so, and you're under 20, how old are you? | |
| Your message | hello we are looking for information in the dutch language because we can�t find anything on the w.w.w. or we don�t know how to look fot it we have a son, 9 years, how is recently positiflie tested for n.l.d. but we would like to learn more about it so we would know how to handel him in a proper way, at home. so if anyone could help us we would be greatful |
| 10/10/01 10:19:37 PM | |
| What is your name? | jackie |
| Where are you from? | uk |
| Would you like a cyber-penfriend? | |
| If so, and you're under 20, how old are you? | |
| Your message | I am a mother of 2, son and daughter, my daughter is 14yrs and has tourettes, she was diagnosed with having tourettes at the age of 11. My daughter suffers very badly with this syndrome, meaning not only having tics but she suffers severely with (coprolalia)shouts obscenities and about everything else that is involved with tourettes. Things do not seem to get any better. my daughter has tried alsorts of drugs and has now just started on sulpiride and is still on ritalin. We have tried to get help from all sorts of DRs but with hand on heart...they don't know what the hell to do with all sorts of explanations not one has helped. she even went to an assessment center for 6months to which i wished i never agreed to because it was no help at all...she now goes to a boarding school which is not for her tourettes but because she has a phobia with schools..my story of these fours years is long so cut a long story short, is there any help out there????????? please email me |
| 10/08/01 11:34:43 PM | |
| What is your name? | Ian |
| Where are you from? | Peterborough |
| Would you like a cyber-penfriend? | Yes |
| If so, and you're under 20, how old are you? | |
| Your message | Hi there..What a great site..I'm now actively seeking a diagnosis for problems I've had for 20 years that seem to relate to TS,ADD,OCD and self-injury. I'm sure this site and its members will help me to turn a corner and see a positive side to all this. Anybody interested in chatting please get in touch..I'll reply to all emails..I have a passion for music and a cutting sense of humour so you've been warned. All the best. |
| 10/01/01 02:06:49 PM | |
| What is your name? | Gillian Stone |
| Your message | I am an advertising student. Currently I am working on a brief to design a campaign which raises awareness of Tourettes Syndrome. I would be most grateful if there is anyone with the syndrome who could write to me conveying their feelings, what it is like to live with tourettes and generally anything that they think would help. My e-mail is [email protected]. Thanks |
| 09/29/01 02:29:16 AM | |
| What is your name? | Talloola65 |
| Where are you from? | Manchester, England |
| Your message | Diagnosed just under 4 years ago, due to my son being diagnosed. Have had severe tics all my life, my son has different tics. He has been in trouble most of his life one way or another, Nothing serious yet, thank god. School we both found a nightmare, me as the parent, him as the child. Its nice to talk about it on your web site, first time I have talked about it I suppose. Would like to get some help now, as my tics are very bad, God 36 and still popping. Well thats it for now Take care Talloola |
| 09/25/01 08:48:14 PM | |
| What is your name? | Ben |
| Where are you from? | Kippax,leeds |
| Would you like a cyber-penfriend? | Yes |
| If so, and you're under 20, how old are you? | 10 |
| Your message | Hi my name is Ben,I have suffered with T.S. for over 4 years now and would like someone to talk to so if you wan't to talk please E-mail me Ben |
| My Guestbook |
| 09/21/01 09:32:12 AM | |
| What is your name? | Ewen Lewis |
| Where are you from? | Canada but reside in Taiwan |
| Would you like a cyber-penfriend? | I'd like as many as possible if you're committed to overcoming TS. |
| If so, and you're under 20, how old are you? | 30 |
| Your message | I am the father of a 13 yr. old boy with TS. We tried Haldol for a while until we found out about the possible side effects. We have been taking him to see a homeopath/chiropractor/aromatherapist with some success. I am particularly interested in pursuing avenues of alternative therapy. Adam has reached a point where he feels utterly helpless. I am worried that he will soon enter a deep depression unless we can pull him out of this stage. Any suggestions would be helpful for my wife and me. Cheers. |
| 09/01/01 05:40:56 PM | |
| What is your name? | Danny Sumbler |
| Where are you from? | England, west sussex |
| Would you like a cyber-penfriend? | please |
| Your message | I am a 28 year old singer songwriter living in West Sussex and am actively seeking other tourettes people for friendship and chat.I've had it for years...and I've never met anyone else with it yet, although of course I know how many have it. I find music comes to me freely, like a lucid dream, and also find the expression in music somewhat like an excorcism...a true healer. If there is anyone out there who'd like to correspond, then please feel free to mail me. I made another entry on this site a while back with the e-mail address [email protected] this has since been lost in cyberspace!!!! My new e-mail is [email protected] Please do contact me....and of course if I can be of any help to baffled parents or kids alike then that would be a pleasure. Cheers and I hope you all stay creative and positive. Enjoy the ups!!!! Dan. |
| 08/28/01 07:10:03 PM | |
| What is your name? | tony |
| Would you like a cyber-penfriend? | YES! |
| If so, and you're under 20, how old are you? | 16 |
| Your message | Hi Mark, i am 16 not 12 but i will talk to you if you'd like somebody to discuss things with, do you have msn messanger??, if so post a message on this forum and let me know, ok? :) Tony |
| 08/26/01 09:00:10 PM | |
| What is your name? | Dee |
| Where are you from? | Canada |
| Would you like a cyber-penfriend? | Yes |
| Your message | Hi.... I'm a mom of 2 children. We have a daughter who is 5 and a son who is 12. Our son has CP, Epilepsy, and is Developmentally Delayed. The Cp is very mild, the Epilepsy is controlled by meds for the most part, and he continues to make gains developmentally all the time. He is a wonderful child and I wouldn't trade him for anything in the world! In Jan of 2000, we began to notice signs common for TS and OCD. For those of you that are familiar with TS you will understand that it takes a frustratingly long time to eliminate other possibilities that these symptoms could be a result of, and so it wasn't until the spring of 2001 that he was diagnosed as having TS and OCD. His initial challenges with this were very mild compared to the extreme that we have been experiencing these last couple of months. We need to find and talk with other families who are dealing with these issues. Because of his developmental delays, his comprehension and his ability to express himself is more limited than another child, which adds to our challenges that we face in dealing with this. I would welcome you with open arms if you are interested in sharing ideas and experiences that may help us as a family, and I'd be willing to return that support to you as well. We are in Canada, but we are interested in talking with families in all locations. |
| 08/21/01 05:39:13 PM | |
| What is your name? | Ann |
| Where are you from? | Suffolk |
| Would you like a cyber-penfriend? | No |
| Your message | I am a Child Care Practitioner and have a young man aged 20 allocated to me. He was diagnosed with TS in September 2000 and prescribed medication. Unfortunately he is a person with a very troubled background and has been in Local Authority care since the age of 12 due to his behavioural problems and also drug/alcohol abuse. He does not take his prescribed medication as he feels it has too many side effects. He was homeless, but placed in homeless accommodation recently. He was evicted from this accommodation due to his behaviour. At present he is again placed in homeless accommodation but has been served with a letter informing him that he has made himself intentionally homeless due to his behaviour. We now have 21 days to come up with a good argument as to why this is not so. We need to dispute the sentence in the letter, "However, although your health problems no doubt contribute to your behavioural problems it is felt that you are responsible for your own actions". Before being found intentionally homeless he had been on the priority housing need list for almost a year and had been living rough. Can anyone assist me with professional advice? |
| 08/20/01 07:30:28 PM | |
| What is your name? | Mark |
| Where are you from? | N.Ireland |
| Would you like a cyber-penfriend? | Definitely |
| If so, and you're under 20, how old are you? | 12 |
| Your message | hi my name is mark and i would love some one to talk and email. i would email any body around my age - i will always reply, someone please help me lots of love mark |
| 08/15/01 03:35:33 AM | |
| What is your name? | Tricia |
| Where are you from? | Washington, Pennsylvania |
| Would you like a cyber-penfriend? | yes |
| Your message | My son was diagnois with tourette syndrome about 1 1/2 years ago. He is 8 years old. At first I didn't know what it was until I took him to several doctors. No one knew what it was. Teachers tried to tell me that he had a very bad behavior problem. I know it was something more than that. Finally, I was reading a book called "Icy Sparks" and that's when I took him back to the doctors. She suggested I take him to see a neurologist. Since then he has been medicated and is doing pretty good. He lives a normal life, plays football and it keeps him calm. Although he still has mild tics, and they do flair up when he's excited, or scared, he has learned how to calm himself down. If there is anybody out there that is from the Washington Pennsylvania area and needs the name of a good neurologist, her name is Dr. Shoba Asthana. Her office is located in Charleroi Pennsylvania. She is one of the best in the area. Hopefully my son will not need to be medicated for the rest of his life. We do sit down and talk about it and his teachers are very much aware of this condition. We also took the time to explain it to his friends, so they won't make fun of him. |
| 08/14/01 10:03:23 AM | |
| What is your name? | christine Ayres |
| Where are you from? | UK |
| Your message | I am a psychology lecturer. One of my mature students (32) has Tourettes syndrome together with aspergers. She is NOT on any medication. Extremely intellingent woman who has an MA in IT. She is NOT receiving enough support in holding down full time employment. Her social worker is not very supportive, and I require some advice as to how this lady can be helped Christine Ayres |
| 08/12/01 10:59:31 PM | |
| What is your name? | isabel |
| Where are you from? | scotland |
| Would you like a cyber-penfriend? | yes |
| Your message | Hi, I am the mother of a son with t.s. he also has aspergers. He is 14 now and it has been a hard struggle. glad to find this site always looking for help |
| 08/09/01 09:32:09 PM | |
| What is your name? | Joshua. |
| Where are you from? | i'm close to hay on wye. |
| Would you like a cyber-penfriend? | yes I would like a penfriend. |
| If so, and you're under 20, how old are you? | I'm ten years old. |
| Your message | Hi, Everybody I'm Josh and I have TS. I would really like a penfriend who understands me and my tics, a boy or girl it doesn't matter just as long as I have some-one to talk too. It would be if you were between 9 and 12 . Thank you. |
| 08/01/01 02:54:25 AM | |
| What is your name? | wendy |
| Where are you from? | nys |
| Would you like a cyber-penfriend? | yes |
| Your message | hello, I just came across this site, im glad i found it. Its a great site. |
| 07/30/01 01:39:11 PM | |
| What is your name? | Michael |
| Where are you from? | Surrey |
| Would you like a cyber-penfriend? | yes |
| Your message | I think I have endured TS for over 40 years without knowing what it was, going through the usual difficulties, abuse at school etc, and found the website last year after reading a newspaper article. It's great to know I'm not alone, nor crazy, and that this thing has a name. I've even been able to talk about it rather than denying it existed. |
| 07/12/01 04:05:42 PM | |
| What is your name? | tibbs |
| Where are you from? | welling kent |
| Your message | Ben from sidcup, try and contact me @[email protected]. |
| 06/30/01 02:56:00 PM | |
| What is your name? | Gurdeep |
| Where are you from? | Birmingham |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | i'm 36 |
| Your message | I am a mother of triplets with with one son who has been diagnosed to having TS more than two years old. It was difficult before because i did not understand what wshappening, but deep down i know something was wrong. It was a relief when we found out what was wrong. I can deal with his condition now. |
| E-mail Website |
| 06/24/01 11:49:38 PM | |
| What is your name? | ben |
| Where are you from? | sidcup |
| Would you like a cyber-penfriend? | no |
| Your message | tibbs from welling can you contact us if poss thanks [problem with your email address] |
| 06/20/01 10:44:58 PM | |
| What is your name? | Stuart |
| Where are you from? | Dunstable Beds |
| Would you like a cyber-penfriend? | no |
| If so, and you're under 20, how old are you? | i`m 44 |
| Your message | Hi all.I`ve had TS since Iwas 7, but only been diagnosed for 5 years. Iwent through hell in my childhood but now I know a lot more about it Iam able to look after my 13 year old son. He`s been diagnosed for about 3 years .Best wishes from both of us |
| 06/20/01 09:33:46 PM | |
| What is your name? | margaret delap |
| Where are you from? | london |
| Would you like a cyber-penfriend? | yes |
| Your message | |
| 06/18/01 12:31:06 AM | |
| What is your name? | Tammy |
| Where are you from? | South Carolina |
| Would you like a cyber-penfriend? | sure |
| If so, and you're under 20, how old are you? | 29 |
| Your message | My 9 year old son was just diagnosed with TS. It is mild now, but could get worse as he gets older. They want to put him in therapy for now. He blinks , hums, tic in his head and shoulders and also his neck. Constant moving. I didn't know so many people have this problem. It's good to know we are not alone. |
| 06/16/01 01:21:13 PM | |
| What is your name? | liz |
| Where are you from? | North Yorkshire |
| Would you like a cyber-penfriend? | Yes |
| If so, and you're under 20, how old are you? | 43 |
| Your message | My daughter aged 11 has just been diagnosed this week with Tourettes. Having gained lots of info from the net about the condition will help me to understand and deal with it, but I would really appreciate any advice on how best to help my daughter deal with it within herself, any methods to help her feel better about herself? |
| 06/15/01 04:22:22 AM | |
| What is your name? | lynn |
| Where are you from? | Hull ,Yorkshire England |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 34 |
| Your message | Hi i am a mum of 4,2 of which are diagnosed ts.I myself after gathering all the info feel that i am also a ts sufferer.My son has learning disability +tourettes but mainly has just facial tics, my daughter on the other hand has few noticeable tics but suffers alot with ocd.Would love to hear from other parents with children with ts. |
| [email protected] |
| 06/11/01 05:39:50 PM | |
| What is your name? | tony |
| Where are you from? | south london |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 16 |
| Your message | if julie and len with the daughter joellen still visit this site could they please contact me, thank you ony |
| 06/07/01 01:52:25 AM | |
| What is your name? | Barry Taylor |
| Where are you from? | South Wales |
| Would you like a cyber-penfriend? | If anyone wants to write, I'll reply - eventually! |
| If so, and you're under 20, how old are you? | 28 going on 10 :o) |
| Your message | What a great site! I've had to put up with various tics for most of my life but never knew what TS was until recently. All the excellent information on this site has really helped. Thanks, Tosy. |
| E-mail Website |
| 06/05/01 08:15:56 AM | |
| What is your name? | Tressa Atwood |
| Where are you from? | Portland, Oregon USA |
| Would you like a cyber-penfriend? | absolutely! I will have a new email address soon though as I am leaving school soon...:) |
| If so, and you're under 20, how old are you? | 19 |
| Your message | I am writing a paper discussiing the ways in which social cognitive phenomena(first impressions, labeling, etc.) influence society's view of people with mental disorders as well as those people's own experiences in dealing with such phenomena. Your site was very helpful and informative. Thank you so much and good luck in the future! |
| 05/26/01 10:30:49 PM | |
| What is your name? | tony |
| Where are you from? | south london |
| Would you like a cyber-penfriend? | if anyone wants to talk, feel welcome |
| If so, and you're under 20, how old are you? | im 16 |
| Your message | hi i am a ts sufferer and have been so since about the age of 7 or 8, i have the mild tics(no swearing or spiting). I would like to hear from anyone else with the same condition as me and find out about them!, i like to draw cartoons and am planing on making a living out of it as i could'nt do very well at school. Anyone who wants to send me an e-mail or chat feel free, my chat handle is pope normally. ok c ya tony |
| 05/22/01 06:48:59 PM | |
| What is your name? | Steve Douglas-Howse |
| Where are you from? | East Sussex, u.k. |
| Would you like a cyber-penfriend? | maybe later |
| Your message | I have been going on about this site to my wife on how great it is so I thought I would tell you too. I was diagnosed in jan 01 and am still finding it hard to cope with at times. This site has given me a new insight into a world of what little is known about. I also think that the people I've spoken to over the web with T.S are the nicest bunch of people one could ever wish to know. I think the site is fab, keep up the good work. |
| 05/18/01 01:59:57 AM | |
| What is your name? | sena |
| Where are you from? | ga |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 12 |
| Your message | hi my name is sena and i have touretts syndrome and im 12 and i would like somone to tak to |
| 05/16/01 04:11:46 AM | |
| What is your name? | John Spencer |
| Where are you from? | Coal Hill, Arkansas |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | I'm 18 and would like to know more about tourettes |
| Your message | Hey, yeah, I've had tourettes for most of my life but it never has been severe. All of the supression has caused some mental anguish though. I'm not going to let it get me down though. Through this, I found out my many creative qualities. I'm writing this for anyone who would happen to stumble across this message and who is at his/her rope's end. Don't give up!!! Find yourself and be happy with who you are. Find your unique quality that God has given you. Don't think that your tourettes has beaten you. |
| 05/04/01 09:45:55 PM | |
| What is your name? | Annie |
| Where are you from? | Cheshire |
| Would you like a cyber-penfriend? | No |
| Your message | Just to let you know that my daugher has Tourette Syndrome and was diagnosed at 7, she is now 11. There is great hope as when she was diagnosed, it seemed a very rare thing to have. However, I now realise that it is not so rare and I am ever hopeful of a cure. We have been to see Mary Robertson in London and she put our minds at rest that in most cases the condition disappears with age, we hope so. But nevertheless, she is a lovely, happy little girl even though life sometimes gets hard for us |
| 05/04/01 07:16:47 PM | |
| What is your name? | jo |
| Where are you from? | uk |
| Would you like a cyber-penfriend? | no thank-you |
| Your message | Great site my son is on the spectrum somewhere??? a lot of what you listed as difficulties fit well. i've been looking at A S and high funtioning. i was looking for sensory integration centre's in the u.k if anyone knows any would pass on any information. spell check not working on my machine sorry!! |
| 05/03/01 11:24:38 PM | |
| What is your name? | Paul |
| Where are you from? | Jersey CI |
| Would you like a cyber-penfriend? | Would never reply.....sorry |
| Your message | I am a sufferer of ts and was only diaginosed in my late 20s.I use to think that I was the only person to suffer from this unusual syndrome, however thanks to your web site I now know that I AM NOT ALONE. I now take an anti depressent called Faverin which has really helped me cope with the various systoms that tourettes has to offer !!I will now be a regular visitor to your web site...THANK YOU |
| 04/21/01 12:39:02 PM | |
| What is your name? | yannick |
| Where are you from? | belgium |
| Would you like a cyber-penfriend? | only on chat |
| If so, and you're under 20, how old are you? | 12 jears old |
| Your message | it's verry nice !!!!!!!!!!!!!!!!!!!!!!!!! |
| 04/20/01 05:33:02 PM | |
| What is your name? | Ryan |
| Would you like a cyber-penfriend? | No thanks, got lots already :) |
| Your message | Hi, want to congratulate you on your fine website :) Its v.good now, just email me if you need any more help, your doing a wonderful service to those out there who need help and information so keep up the good work |
| 04/16/01 11:18:51 AM | |
| What is your name? | Molly |
| Where are you from? | London |
| Would you like a cyber-penfriend? | Not at the moment |
| Your message | I am a sixty-nine year old and I've lived with TS (only I was never told what it was, and I thought it was Chorea (Huntingdon's Disease until I read about TS) since I was a child. I do not shout, but have all the other associated tics (mouth twitches and eye-blinking.) I have always been too embarrassed to discuss it with anyone, even my doctor, and would like some information on medication for this disease. |
| 04/15/01 07:38:37 PM | |
| What is your name? | Katie |
| Where are you from? | Dorset |
| Would you like a cyber-penfriend? | no |
| Your message | My 12 yr old daughter was diagnosed with TS about 4 yrs ago she showed symptoms from the age of 6, but it took a long time for me to convince any one that I was not imagining it! We go to the local childrens centre and the TS clinic in London.We tried Haliperidol but she reacted really badly to that, and we have tried all different kinds of complementary therapies etc etc. We do laugh about it aswell though, one of the things she often shouts out at the wrong times is "Twickenham!" it is certainly an ice-breaker in a crowded lift! looking forward to hearing from anyone out there. |
| 04/11/01 08:57:08 PM | |
| What is your name? | graeme |
| Where are you from? | uk |
| Would you like a cyber-penfriend? | no thank you |
| Your message | Hi Great site, keep up the great work. my disability is APD, and I have just started a site for the UK to help the disabled especially those of school age. I have included a link to your site on a new Tourettes Syndrome page. I hope to build a network for support groups through out the UK. But only time will tell Us parents need to work together. graeme |
| E-mail Website My Guestbook |
| 04/02/01 01:54:07 PM | |
| What is your name? | Harvey |
| Where are you from? | Montreal, Canada |
| Would you like a cyber-penfriend? | No thank you |
| Your message | April 2, 2001 Hi, everyone. I left a previous message that I wanted to change, but could not get into it. I'm a youthful 51-yer-old who has both OCD and Tourette's. The TS was diagnosed only about 3 months ago. I suppose that like so many people, my TS symptoms wax and wane. My OCD is under good medical control. I would like to receive more information about your group, in particular news bulletis, forum announcements, news and views, book reviews, and upcoming conferences. There is one English-speaking TS group in Montreal that meets only once a month, and there is also a French-speakig group. I also belong to an Internet group called TSWorld, but unfortunately it has very few members. I hope to hear from you soon. Cheers. (I think that's what Brits say.) Harvey [email protected] |
| 04/02/01 01:35:42 PM | |
| What is your name? | Harvey |
| Where are you from? | Montreal, Canada |
| Your message | I'd like to stay informed of your activities through your newsletters, book reviews, announcements, and events. |
| 03/29/01 11:23:35 AM | |
| What is your name? | Jane |
| Where are you from? | Devon, UK |
| Would you like a cyber-penfriend? | Yes |
| If so, and you're under 20, how old are you? | 15 |
| Your message | I'm 15 & have OCD. If anybody would like to share their experiences with me or give me any advice on how to deal with it without medication, please get in touch. Thank you & good luck to everybody with similar disorders and their families. x |
| 03/28/01 04:16:38 PM | |
| What is your name? | Brandi Rollins |
| Where are you from? | Cullman, Alabama |
| Would you like a cyber-penfriend? | Yes, I would love to learn more about tourettes |
| Your message | I have a 9 year old son with tourettes. He has been diagnosed for about a year now. I need to find a Doctor that can help us with this. He shakes his head really bad and snaps his fingers. He is struggling really bad with school which I have heard is part of the tourettes. I would love to hear from anybody that can help me! Thanks! |
| 03/13/01 07:12:19 PM | |
| What is your name? | jackie |
| Where are you from? | uk |
| Would you like a cyber-penfriend? | no |
| Your message | hi, we have a daughter who is nearly 6, for the last few weeks she has started curling her lip (like Elvis) screwing up her nose and blinking a lot. A few months before this she used to blink, touch her face,ie brush her hand over her cheeks and forhead. we are quite worried, is this TS? It would be great if anybody could help, many thanks. |
| 03/05/01 03:11:29 AM | |
| What is your name? | Bill |
| Where are you from? | Rhode Island USA |
| Would you like a cyber-penfriend? | ok |
| If so, and you're under 20, how old are you? | 51 |
| Your message | I'm51 years old with T/S,ADHD and mild OCD. I learned that I had this about six years ago.I always knew I had something but coun't put a name to it. |
| 03/03/01 10:13:24 PM | |
| What is your name? | KYLE |
| Where are you from? | Oldham |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 11 |
| Your message | Hi if someone wishes to talk i am here i have ts and ocd |
| 02/25/01 02:56:44 PM | |
| What is your name? | Babs |
| Where are you from? | Manchester |
| Would you like a cyber-penfriend? | no thankyou |
| Your message | Hello, I have been searching for info. re.TS on many sites, glad to have found this one. |
| 02/19/01 10:23:58 AM | |
| What is your name? | James Tate |
| Where are you from? | Tillicoultry, Scotland |
| Would you like a cyber-penfriend? | Yes |
| If so, and you're under 20, how old are you? | (quite a bit over!) |
| Your message | I am an Adult Learning Tutor providing support and tuition to adults, many of whom suffer from physical and/or mental disabilities. I feel the opportunity to communicate with understanding souls would help me in my task. |
| 02/17/01 06:09:37 AM | |
| What is your name? | Bro. Luke D. Stone, T.O.R |
| Where are you from? | Keyser, WV 26726 |
| Would you like a cyber-penfriend? | No |
| If so, and you're under 20, how old are you? | NA |
| Your message | I've learned about turret's disease several years ago via a priest friend that had to control/discipline himself immensely (by not shouting out vulgar obscenities, etc.) while celebrating daily liturgy or giving the homily in his church. My second encounter with turret's was through a parishioner who attends our church. Her symptoms would occur at public worship services, in smaller group meetings, and even during secretarial assistance with one or two of us, and also just working, cleaning,and decorating in church throughout the year with just a few people present! Today, it's been brought to my attention once again through a friend in Levittown, PA., whose sister's eight year old son living in a nearby town, has been examined and diagnosed at the Philadelphia's Children Hospital with this neurological disorder! THANKS to your informational set up on the Internet, I've been personally updated once again & have been able to directed others to this educational/medical site! |
| E-mail Website |
| 02/15/01 01:43:33 AM | |
| What is your name? | Nick |
| Where are you from? | London, but live in Lisbon, Portugal |
| Your message | I'd never really thought about searching for a site dedicated to Tourettes, so was really surprised when I finally did and discovered this one. The message forum is so interesting and helpful, but most of all it's so great to feel less alone with Tourettes. I was diagnosed with T.S. 12 years ago and despite very understanding family and friends I've always felt that unless you have it people cannot possibly know what it is really like. It's so good to be able to air ideas and run things by others who really do know and care. Bravo to everyone who contributes! |
| 02/14/01 10:06:39 PM | |
| What is your name? | Andy |
| Where are you from? | Notts |
| Your message | just passing through having a look like I have done many times before. Wow haven't I learnt much from this site. I'm diagnosed with AD/HD, dyslexia and C.M.T. (type of Muscular Dystrophy) my son is diagnosed with AD/HD plus a number of other neurological conditions. However not diagnosed with TS however plenty of symptoms showing for both of us. Well must go take care, Andy |
| E-mail Website |
| 02/11/01 10:29:06 PM | |
| What is your name? | Donna |
| Where are you from? | Reading, Pennsylvania |
| Would you like a cyber-penfriend? | I sure would. I am an adult w/T.S. |
| Your message | Hi, I am an adult w/T.S. which I have had since I was a small child, but was not diagnosed until about 3 years ago. I always just thought there was just something wrong w/me. I have alot of pain from the ticks and do not get much relief, even when I sleep. Anyone who wants to chat or suggest things that have helped them, are quite welcome. Thanks and have a great day! Donna Grammy) |
| E-mail Website |
| 02/08/01 10:56:46 PM | |
| What is your name? | Mandy |
| Where are you from? | Walsall, West Midlands. |
| Would you like a cyber-penfriend? | Yes |
| Your message | I have a 13 year old daughter who suffers from TS, OCD & ADHD and would love to chat to anyone who can share info and advice. |
| 02/05/01 10:39:37 PM | |
| What is your name? | simon tyler |
| Where are you from? | derbyshire |
| Would you like a cyber-penfriend? | no |
| Your message | hello im an employment co-ordinator working for remploy l.t.d.recently a young man started work for us and was diagnosed as having tourettes i was ignorant to his behaviour as was the staff i feel undo pressure was placed on this lad by both staff and uncaring parents,i have taken action to ease the pressure of work but feel 'k' is prone to schizophrenia and paranoid could these other problems be part of tourettes i am concerned for 'k's future as he as indicated he has no will to live.look forward to hearing from you ..simon |
| 01/31/01 09:38:17 PM | |
| What is your name? | mrs june lilly mynard |
| Where are you from? | Birmingham England uk |
| Would you like a cyber-penfriend? | no |
| If so, and you're under 20, how old are you? | n/a |
| Your message | my wife has this condition and we would like some help she jumps when she is a sleep and some times has breathing problems when she is a sleep that makes her jump up she says she thinks that she has stopped breathing |
| 01/25/01 06:38:05 AM | |
| What is your name? | JONI TROUT |
| Where are you from? | Arizona, USA |
| Would you like a cyber-penfriend? | Yes, the mother of S. |
| If so, and you're under 20, how old are you? | 44 |
| Your message | Hi, I wrote lots and then it disapeared. If you by chance got it please let me know. It's too late to begin again tonite. |
| 01/24/01 04:47:47 PM | |
| What is your name? | tibbs |
| Where are you from? | Welling kent |
| Would you like a cyber-penfriend? | No |
| Your message | My 10 year old son was diagnosed with TS ADHD OCD and PDD about 4 years ago, was removed from mainstream school and now attends a special needs school, after various medications finally found one that helps (RISPERADOL) Great site and well presented, keep up the good work. Best wishes Tibbs. |
| 01/22/01 10:49:40 AM | |
| What is your name? | Daithidh MacEochaidh |
| Where are you from? | all over (North Northumberland for now) |
| Would you like a cyber-penfriend? | yes, but this e-mail address is only for a month |
| If so, and you're under 20, how old are you? | ancient, getting older every day |
| Your message | The site is well thought out, interesting and full of sound information. I only wish that I had had access to such information years agan. My TS is very atypical and has been both a bane and a blessing. It definitely helps with ma 'work'- I'm a noveliest, poet, short story writer, etc, but other aspects have led me one hell of a ride through ups, downs, sideways, emotional break-ups/downs/all ways and all the rest of it. Funnily enough I'm better having kicked haldol into touch, though I tick more, esoecially verbally - not much of a body ticker. I am interested in others who have used their TS in creative ways, especially if the TS is somewhat atypical. Anyroad, love the site, will be back for more, ciao for now, slan agus beannacht... |
| 01/18/01 12:08:49 PM | |
| What is your name? | DYCK |
| Where are you from? | BRISTOL UK |
| Would you like a cyber-penfriend? | NO |
| Your message | AT 61 YRS YOUNG I AM WRITING IN REGARD FOR MY GRANDSON WHO HAS BEEN DIAGNOSED WITH TOURETTES SYNDROME. WITHOUT QUESTIONING HIS PARENTS EXTENSIVELY I STILL WOULD LIKE TO KNOW MORE ABOUT IT. IS IT SOMETHING THAT ONE IS BORN WITH - ALWAYS, OR CAN IT ALSO DEVELOP LATER SAY THROUGH STRESS OR DISTURBANCE FOR EXAMPLE? MY GRANDSON HAS BEEN PRESCRIBED MEDICATION - I AM NOT A STRONG ACCEPTOR OF PUSHING DRUGS INTO PEOPLE WITHOUT HAVING FIRST CONSIDERED ALTERNATIVE BUT ACCEPTED METHODS OF HANDLING MEDICAL PROBLEMS. THE MEDIA TODAY IS DEMONSTRATING THAT POSSIBLY OUR RESORTING TO DRUGS ADLIB IS NOT NECESSARILY THE BEST WAY FORWARD - MIS-DIAGNOSIS SHOULD ALSO BE CONSIDERED |
| 01/02/01 05:18:30 PM | |
| What is your name? | Brett Wolfindale |
| Where are you from? | UK |
| Would you like a cyber-penfriend? | Not at present |
| Your message | My 16-year-old son has mild-to-ressessed TS + mild-to-medium ocd. He is in denial of the condition. Probably this is his way of coping with not wanting to be "different." However, my wife and I find that this attitude makes it really difficult to move forward. He was diagnosed with TS+OCD in Sept 1998 at age 13 by a local child psychiatrist familiar with the condition, when there was a sudden appearance of tics (no obvious tics previously)plus strange behaviour more related to the OCD. We were given a couple of leaflets from the TSA(UK): we contacted them to receive further help. We are a family subscribing to the TSA(UK), and were referred to Dr Hugh Rickards of the QEH B'ham, for confirmation of the diagnosis, who also carried out tests to rule out other conditions, owing to the "atypical presentation." I got involved in a couple of newsgroups based in the States, and found internet info on various websites particularly helpful (and even therapeutic!). However, my son "made" me remove all references to TS and ocd from the house, incl. from the computer, forcing me into "hiding," as far as keeping contact with folk, and storage of literature. For this reason I wish to remain anonymous, but am prepared to operate under a pseudonym (how about "Flare?") For the time being, though, I prefer this story to be kept private. How do you find the Tourette Syndrome (UK) Association? My wife and myself have been to one AGM each, which were both helpful, interesting, but also disturbing. PS I'm using my works e-mail address - well away from home! |
| 12/29/00 02:54:06 PM | |
| What is your name? | F |
| Where are you from? | UK |
| Would you like a cyber-penfriend? | No |
| Your message | I'd just like to say I think this website is brilliant. My friend has TS so I decided to find out more about it, and this is the best site I've come across so far, as it's very informative. I've had nervous habits since I was 4 and my mom took me to the doctors, but they told her it would go away. I think the habits did get better for a while, but they came back when I was about 8 or 9, which I was teased about at school. I've had these habits, which are mainly facial twitches, all the time since then and now I'm 15 and they seem to be worse again. I'm not sure if I have TS or not, as I haven't seen a doctor about it, but I'd just like to say thankyou to the owner of this website for bringing me a step closer to the truth, as all I really want is a name for what I've got to prove to myself that I'm not paranoid. |
| 12/17/00 05:00:03 PM | |
| What is your name? | Mike Petersen |
| Where are you from? | Gravesend. Kent. UK |
| Would you like a cyber-penfriend? | Not at present |
| Your message | My grand daughter has Touretts. At last I have found a source of information we have been so sadly lacking to help us with information. Thankyou |
| 12/17/00 12:21:10 AM | |
| What is your name? | mike conley |
| Where are you from? | U.S.A. |
| Would you like a cyber-penfriend? | yes.need help |
| If so, and you're under 20, how old are you? | no |
| Your message | I.am very obsessed with repeating !I having trouble!when get mad or frustrated over several tasks=finding/parent's phone line busy/waiting ing long for cashier/pants slipping /ETC |
| 12/07/00 06:38:06 PM | |
| What is your name? | Kyndall Hardie |
| Where are you from? | Jonesville,LA |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 15 |
| Your message | Hi! I have a boyfriend of 1Yr. and he has ts. It is kinda hard dealing with it sometimes.This website was very helpful. THanks!! |
| 11/17/00 08:10:43 PM | |
| What is your name? | Mary |
| Where are you from? | Aberdeen |
| Would you like a cyber-penfriend? | yes |
| Your message | I would like to hear from people with children of TS and how it affects them and how they deal with the teachers and doctors, and what they know about medication and how they cope.I have just recently been told my son has symptoms of TS and realised that I myself have symptoms of this too, which I did not realise until now |
| 11/15/00 10:02:07 PM | |
| What is your name? | donna adams |
| Where are you from? | aberdeen |
| Would you like a cyber-penfriend? | yes |
| Your message | My friend is awaiting an appointment with a specialist for her 8yr old son who shows all symptoms of TS I would like to know more |
| 11/15/00 05:50:50 AM | |
| What is your name? | Steph |
| Where are you from? | LA |
| Would you like a cyber-penfriend? | no |
| Your message | This site is a blessing! I have a son with TS. Part of my website is dedicated to bringing information to parents and educators. If you would like to visit it click on the link above or the homepage (TS is listed under Special Needs) http://www.parentpatch.com Thanks again! I'm glad to find another site with so much information! Steph |
| E-mail Website |
| 11/10/00 11:18:05 AM | |
| What is your name? | tim |
| Where are you from? | belfast |
| Your message | I know i've been burdened with this affliction all my life. At 42, I,ve spent most of my life in the Army anf the Police service. It still plagues me, and I jsut keep toughing it out. Tell younger sufferers not to give up on themselves, they have every right to a decent life. Take care, and strive. |
| 11/06/00 01:08:35 AM | |
| What is your name? | Danny Sumbler |
| Where are you from? | West Sussex |
| Would you like a cyber-penfriend? | Yep, more the merrier. |
| Your message | I'm a 27 year old singer-songwriter who has suffered and gained from having tourettes all of my life, although I was only diagnosed at the beggining of this year.It's funny, but even some people who think they know me well, still refuse to believe it. Under all these circumstances we must, all of us, stick together and zap them with our humour!! Bless all of you who have, and still are, fighting for a true non-sensationalist view for people unaware of tourettes through all forms of media, and bless all of you doctors and specialists. I write a lot of prose on tourettes, as well as my music, so if anyone knows of any specialist publishers I would be more than gratefull for your help. Feel free, anyone who suffers, and anyone who looks after anyone who does, to contact me and I'm sure with good correspondance we can chase the devil out of all of us, and into the mind's of all those sceptics.Even if it was just for a day I think it would be too much for them.If theres any younsters out there who are suffering then take no notice, for they are only covering for their own insecurities and secretly, I think that they would like to be just like you.Never forget that your'e special, any of you. Bless you all and hope to hear from some of you soon. Cheers!! Dan. xxx |
| 11/04/00 03:34:30 AM | |
| What is your name? | Tracie |
| Where are you from? | Ohio, USA |
| Would you like a cyber-penfriend? | Yes |
| Your message | I have a 7yo daughter with TS. She would like a pen-pal. Our address is PO Box 1187 Pataskala OH 43062. Her name is Erica. |
| 11/01/00 10:26:16 PM | |
| What is your name? | Jakki |
| Where are you from? | Gosport, Hampshire |
| Your message | Our 7 year old son has just been diagnosed with Tourette's, ADHD and OCD. He has tried Ritalin but had trouble with rebounds, now he is on Dexedrine and has trouble with sleeping. He is really struggling and it seems so unfair in one so young. We are pulling our hair out! Our 9 year old son has just started the same symptons, are we being paranoid or just cautious? Both our sons rock their heads from side to side when trying to get to sleep, has anyone else had this happen? Has anyone tried any natural remedies? Please help! |
| 10/30/00 03:22:07 PM | |
| What is your name? | Alden |
| Where are you from? | New Orleans, LA |
| Would you like a cyber-penfriend? | Sure |
| If so, and you're under 20, how old are you? | 17 |
| Your message | Hi. I'm a pilot. I've had Tourettes and OCD since I was 7. I'm very involved with other people, especially younger kids with TS, so please don't hesitate to send me a message. I also have an AOL screen name and ICQ, so you can contact me woth those too after you've e-mailed me. I hope to hear from some of yall soon, I'm a very open person. |
| 10/28/00 03:45:29 PM | |
| What is your name? | Barbara Arnold |
| Where are you from? | Berkshire |
| Would you like a cyber-penfriend? | No |
| Your message | I am a hypnotherapist treating a client whome I suspect has this syndrome. Thankyou for the information, it was most useful. |
| 10/14/00 10:22:15 PM | |
| What is your name? | wendy & steve |
| Where are you from? | Cheshire, UK |
| Your message | Hi Everyone, We had been having behaviour problems with our 4 yeard old son roughly for the last 2 years, we arranged an appointment to see an independant special needs advisor and having discussed and been checklisted for various disorders all signs seem to point to tourettes. We are terribly confused and would really appreciate any advice, help or guidance with regard to what to expect and what to do next. Look forward to hearing from you. regards Steve & Wendy |
| 10/06/00 08:07:38 PM | |
| What is your name? | JOHN HALEY |
| Where are you from? | STOCKPORT |
| Would you like a cyber-penfriend? | NO |
| Your message | My son of 13 years has just started taking clonidine for his ADHD,he also has Tourettes and mild OCD.Has anyone tried clonidine and if so did it help,were there any side effects. |
| 10/05/00 12:26:33 AM | |
| What is your name? | Jeff |
| Where are you from? | London |
| If so, and you're under 20, how old are you? | 26 |
| Your message | Fantastic site.I suffer badly with TS although I have never seen a doctor about it. Reading the info here has lifted a huge weight off my shoulders. Thank you. |
| 09/27/00 06:49:27 PM | |
| What is your name? | Sarah "Jack" James |
| Where are you from? | Birmingham UK |
| Would you like a cyber-penfriend? | Yes |
| If so, and you're under 20, how old are you? | 14 |
| Your message | Never spoken to another TS sufferer, i suffer mildly myself.Had it since I was 8 got diagnosed about a year ago! E-mail me! |
| 09/18/00 12:56:12 PM | |
| What is your name? | Carol |
| Where are you from? | Birmingham, England |
| Would you like a cyber-penfriend? | Yes |
| Your message | Hello My name is Carol and I have two children one with TSA and one with Aspergers Syndrome It would be great to have someone to talk to in similar circumstances |
| 09/17/00 01:36:49 PM | |
| What is your name? | Andrea Bedford |
| Where are you from? | West Sussex, UK |
| Would you like a cyber-penfriend? | Yes |
| Your message | Have seen a few programs on TS and have become interested in learning more. The site has given me some good insight. Atm I suffer with M.E and know all about ppl not understanding conditions and the lonliness that goes with it. Would love to hear from anyone who could share their experiences of TS/OCD/ADHD/ADD or even if you just wanna chat... |
| 09/10/00 11:31:16 PM | |
| What is your name? | Leslie Packer |
| Where are you from? | Beautiful downtown Long Island, New York |
| Would you like a cyber-penfriend? | Good grief, I'm already behind in mail! :)) |
| Your message | Just stopped in to see how this site was doing and am so very, very impressed with the wonderful job you've done, tosy. Keep up the great work! I'm so glad that there's such an up-to-date resource on your side of "the pond." |
| E-mail Website |
| 09/09/00 09:59:42 PM | |
| What is your name? | Joanne |
| Where are you from? | London |
| Would you like a cyber-penfriend? | Yes |
| Your message | Hi I am a mum whose son has been diagnosed with tourettes. I have just discovered this website and have found it very useful. I would love to speak to any parents whose children also suffer this condition. All this is very new to me and I need to understand what to expect and how to deal with what lies ahead. Also my son who is eight would love to speak to any child with the condition. |
| E-mail Website |
| 09/06/00 08:03:16 PM | |
| What is your name? | Rosa |
| Where are you from? | london England |
| Would you like a cyber-penfriend? | no |
| Your message | I have a 17 year old daughter with tourettes ocd and a phobia. She is on prozac. Is there anyone who has tried alternative medicines and do they work. Ishould be grateful to know. |
| 09/06/00 01:01:40 PM | |
| What is your name? | Merete Hansen |
| Where are you from? | Denmark |
| Would you like a cyber-penfriend? | Yes |
| Your message | I�m a single mom, 2 children a son aged 12 and a daughter aged 10.My som has got the mild T.S wih adhd and ocd.I have absolutly not experience and feel a very big frustration.My son was diagnosed in April and still nothing has been done.He�s a very lony boy, but with a very high iq, so his is doing very fine in the scoll, just not socially. I would like to be in contact with other parents, who knows about this problem. |
| 09/05/00 01:26:06 PM | |
| What is your name? | Helen |
| Where are you from? | Cheltenham |
| Would you like a cyber-penfriend? | No |
| Your message | Our son has just turned 8 and has Tourette Syndrome, ADHD and OCD. He is taking various medications and we have just after a long fight got him a statement with 10 hours support. We are happy to share our experiences with others and are always grateful for any advice. |
| 09/05/00 03:24:24 AM | |
| What is your name? | Tris |
| Where are you from? | London UK/Live GA USA |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 14 |
| Your message | I have been diagnosed with Ts for the last 2 years. Now i have puberty to deal with and would love to hear from other kids my age who have this.. Its a bummer sometimes...especially with the ADHD and OCD |
| 09/03/00 03:45:37 PM | |
| What is your name? | Jan Cooper |
| Where are you from? | Lincolnshire, England |
| Would you like a cyber-penfriend? | No |
| Your message | Great to know there are others who understand. Mother of 21 year old girl who has reasonably mild form of T.S. |
| 08/24/00 09:16:23 AM | |
| What is your name? | Ann Schmidt |
| Where are you from? | Germany |
| Would you like a cyber-penfriend? | No |
| Your message | I recently saw an interview with someone who talked about her illness - counting everything x 6. I must admit I count almost everything I see, but never saw this as an illness, just a quirk of nature and it has never realy bothered me. I presume this is a very, very minor sympthom of OCD, I didn't realize that such an illness existed. Good Luck to all who suffer from this illness |
| 08/06/00 10:46:14 PM | |
| What is your name? | Basil Allschwang |
| Where are you from? | South Africa |
| Your message | Father of a TS sufferer as well as having TS myself |
| 08/06/00 04:49:29 PM | |
| What is your name? | Anna |
| Where are you from? | Sussex,England. |
| Would you like a cyber-penfriend? | yes. |
| If so, and you're under 20, how old are you? | 17 |
| Your message | I watched a programme with children who suffer from TS on.and i found it very interesting.I think this website is very informative.i would love to e-mail someone with TS to find out more.Feel free to e-mail me anyone!!!!x |
| 08/02/00 08:10:48 PM | |
| What is your name? | Ronny Pelucci |
| Where are you from? | Durban, South Africa |
| Would you like a cyber-penfriend? | yes |
| Your message | My son of 14 has TS and would really like to hear from others as he is having a rather hard time with it at the moment. |
| 07/31/00 09:22:04 AM | |
| What is your name? | Rose |
| Where are you from? | london |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 18 |
| Your message | I suffer quite badly with TS but I am not on any medication as I worry about the side effects. Can someone tell me how they find taking haloperidol? I need to take something but wonder whether the effects of the drugs may be worse than the illness. Please let me know or please let me know what works for you. |
| 07/30/00 02:06:28 AM | |
| What is your name? | Pepin Marshall |
| Where are you from? | Bristol, UK |
| Would you like a cyber-penfriend? | Yes please! |
| Your message | Hello. I am a 21yr old chap with mild TS who would be most happy to receive mail from guys or gals of a similar age to me with TS. We could share our knowledge and experiences, and it would be fantastic just knowing I'm not the only one who goes through this, as I have never spoken to anyone with TS. |
| 07/17/00 01:29:48 AM | |
| What is your name? | shamane |
| Where are you from? | Southern Californis |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 25 |
| Your message | I have been diagnosed with tourettes since I was about 12yrs old. I have not yet to have met another person who suffers from this syndrome.It get lonely trying to talk to someone who has no clue of what you go threw in everyday life. I am in search of a could chatroom to talk to people all over the world who suffer from touette's.If anyone knows of any please let me know. I have never been on any kind of meds.or other treatments mine is a very mild case thank god for that one. When I was a kid I thought my life couldn't get any worse my parents were divorced and we were poor. And all of a sudden I have this diease now.How much was I expected to handle. It's hard to grow up when everyone looks at you funny cause you can't help making faces and tics. |
| 07/16/00 07:46:10 PM | |
| What is your name? | Roberta Schwartz-Israelsky |
| Where are you from? | Cherry Hill, NJ USA |
| Your message | My son has had Tourettes since age 8. He is now 14 and adolescence is wreaking havoc on his tics. He is on Haldol and Prozac, but I am always looking for alternative therapies. Your website was very interesting and I will keep going to it for further info. Thanks |
| 07/10/00 08:20:53 PM | |
| What is your name? | kitty kilian |
| Where are you from? | netherlands |
| Your message | thank you for a wonderful site! what a great idea - i have often thought a site like this would be most useful for parents of gts-patients, but never got round to making one. i have a son of 8 with moderate tourette - but even moderate is enough to put a household into constant turmoil! now that he is at boy scout camp for a week i realise again how strained we, the parents, are, and how we figuratively speaking have to walk on tiptoes every day to keep everybody happy. (i am a mild tourette myself, which makes all this turmoil even more hectic). tourette may bring out the best in parents, sometimes and hopefully often, but at other times it also brings out the worst, with all the guilt feelings attached, that invariably come, afterwards. i may write more fully later or contribute some of my own experiences, but right now i cannot type for too long since i have rsi and should not get near a computer at all! so this goes just to say thanks for all your effort - i have ordered some of the books that i didn't know and i have also read with great compassion yours and some of the other life-stories. i can feel for you all - so thanks. |
| 07/05/00 12:41:08 AM | |
| What is your name? | Karen Lyster |
| Your message | Hi, really lovely
site! I was visiting another page when I saw your link so have dropped in for a visit.
It's always nice to see what other people create. Karen |
| E-mail Website |
| 06/26/00 10:10:11 PM | |
| What is your name? | jayne |
| Where are you from? | gloucester |
| If so, and you're under 20, how old are you? | yes please |
| Your message | hi - I have an
eleven year old daughter who has been diagnosed with ADHD,ADD,MILD TOURETTES,she suffers
with enuresis and encopresis, school phobia - not a single friend and very unhappy BUT, after a battle we have now managed to get through the STATEMENTINGprocess - Lauren takes Ritalin and Sulpiride at present with weekly counselling. I would like to speak with someone with similar circumstances for support, ideas and just to look at the funny and positive sides.Thank you for the great web site. |
| 06/20/00 11:06:30 PM | |
| What is your name? | Anya |
| Where are you from? | MI, US |
| Would you like a cyber-penfriend? | Yup |
| If so, and you're under 20, how old are you? | 16 |
| Your message | Hi, I have had tourett's for as long as I can remember, but when we actually went to the doctor he said it was nothing, so I was never actually diagnosed.A few days ago I saw a TV show about a boy with Tourette's and it made me wonder, and I stumbled on this site. Thank you for helping me learn more about this. |
| 06/20/00 07:04:10 PM | |
| What is your name? | Kerry |
| Your message | Hi, I was told about your website by a friend you all have probably heard of called Harrassed mum. She gave me this address as I have a son with asperger's syndrome and she thought this site may be able to help me - I do hope so and maybe I might be able to help someone too. Of course I would be only too willing to do so. Hope to speak to you soon. |
| 06/18/00 05:54:02 PM | |
| What is your name? | Josephine Hodgson |
| Where are you from? | Ponntefract |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 40 |
| Your message | I have a Son aged 15 with severe Tourettes, has anyone tried anything other than the usual medication that has worked. |
| 06/14/00 10:37:39 PM | |
| What is your name? | Beth Morale |
| Where are you from? | Dallas, TX |
| Your message | I am an art therapy student and am wondering if any Tourette Syndrome patients have tried art therapy in their treatments. If so, has it been beneficial? I would appreciate any information concerning this. Thank you. |
| 06/12/00 02:35:43 PM | |
| What is your name? | Virginia Ochman |
| Where are you from? | USA |
| Your message | my son has recently been diagnosed with TS and I found your site helpful. Thanks |
| 06/09/00 09:46:47 PM | |
| What is your name? | Dot |
| Where are you from? | Wales |
| Would you like a cyber-penfriend? | yes |
| Your message | nice to have someone to talk to about such a complicated syndrome |
| 06/01/00 02:22:11 PM | |
| What is your name? | solvig |
| Where are you from? | London |
| Would you like a cyber-penfriend? | That would be nice |
| If so, and you're under 20, how old are you? | no |
| Your message | I have Ts and
suffer quite badly, feel isolated, never even talked to someone with TS so please write to
me about your experience. All mails answered.Thanks Solvig |
| 05/31/00 03:54:21 PM | |
| What is your name? | Ali (tys mom) |
| Where are you from? | louisiana |
| Would you like a cyber-penfriend? | yes |
| Your message | it started 7 yrs ago with adhd. Have gone through all the meds. now has added ts.(not to metion going through puberty!!) |
| 05/29/00 11:23:54 PM | |
| What is your name? | joshua morgan |
| Where are you from? | bagdad,az |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 16 |
| Your message | my name is joshua and i have tourettes syndrome and i would really like to know more about this as well as to talk to others with this. |
| 05/28/00 07:33:55 PM | |
| What is your name? | JOHN HALEY |
| Your message | My 12 year old son
has tourettes syndrome and currently is constantly repeating the same word.He has tried
haloperidol and ritalin in the past without much success.Does anyone have any ideas
please.He appears to have ADHD and the school he attends are now beginning to lose their patience.Thank you. |
| 05/24/00 05:05:19 PM | |
| What is your name? | Nick Pino |
| Where are you from? | Bloomington Mn |
| Would you like a cyber-penfriend? | no |
| If so, and you're under 20, how old are you? | no |
| Your message | Your site has helped me out a lot. I am doing a research project on Tourettes syndrome. Your site Rules Dwag!!!!!!!!!!!!!!!!!!! |
| 05/22/00 02:17:09 PM | |
| What is your name? | Karen |
| Where are you from? | London |
| Your message | Thank you so much for this great website! I have just met a great guy who has TS. We haven't spoken about it but I wanted to do some homework for when he is ready to talk to me. I have never before met anyone who has it, and am quite angry at the way the media portrays TS. Thank you again for a much needed education! |
| 05/12/00 09:59:22 PM | |
| What is your name? | Helen |
| Where are you from? | Worcestershire |
| Would you like a cyber-penfriend? | yes |
| Your message | My 8 year old son is being seen Re: suspected TS and has had symptons for approx 10 months. I would like to talk to anyone for either support or just general information |
| 05/12/00 02:57:03 PM | |
| What is your name? | nikki |
| Where are you from? | hebron |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 15 |
| Your message | i would like to know more about people with my disease |
| 05/08/00 10:25:27 PM | |
| What is your name? | Ashley Bourne |
| Where are you from? | Stoke-On-Trent |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 14 |
| Your message | great web site,
feel free to e-mail me hope to see you soon Ashley |
| 05/05/00 08:26:28 AM | |
| What is your name? | Fran (GG) |
| Where are you from? | Ipswich, Australia |
| Would you like a cyber-penfriend? | Please! |
| Your message | I'd love to hear from anyone about TS and it's associated disorders. I'm a 23 yo who has only just been officially Dx'd. I will be moving to the UK next year and would like to make some contacts with UK TS'ers. If you want to know more about me, visit my webpage and sign my guestbook....there's a new page in the making, including a TS page - input is most welcome. |
| E-mail Website |
| 05/02/00 09:42:04 PM | |
| What is your name? | JULIE |
| Where are you from? | Lincolnshire |
| Would you like a cyber-penfriend? | my daughter Jolene would |
| Your message | Hello im Julie,we
have a 15 year old daughter Jolene,who has T/S, O,C,D. A,D,H,D & learning disabilities,If any one would like to get in touch please do so especialy those in Lincs.by the way i think this is a great site..... |
| 05/01/00 06:50:34 PM | |
| What is your name? | Cheryl |
| Where are you from? | Louisiana, U.S.A. |
| Your message | Nice site you have here....I just wanted to drop in and say hello.... |
| E-mail Website |
| 04/29/00 11:12:46 AM | |
| What is your name? | Narelle Brown |
| Where are you from? | N.Ireland |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 10 |
| Your message | Hi my name is Narelle and i have a brother who has TS, ADHD, OCD and ODD he is Mark who is further down the page.Although i do not suffer from any of these conditions i do be effected by the symptoms of his conditions. I would really like to here from other kid`s who may have a family member with TS etc and we could share experiences feelings and thoughts and try to help each other. hoping to here from someone soon Narelle B. |
| 04/28/00 06:28:47 PM | |
| What is your name? | Matthew Mickler |
| Where are you from? | Manchester, England |
| Would you like a cyber-penfriend? | no ( email broken ) |
| If so, and you're under 20, how old are you? | 16 |
| Your message | I have a very mild tourette syndrome but it doesn't affect my life much. I hardly have any noticable tics or vocal tics anymore thanks to medicines such as chlonidine, Risperidone and Chlomamipramime. Cool site but what is the site's owner called? |
| 04/28/00 01:20:05 PM | |
| What is your name? | James Gill |
| Where are you from? | Oxfordshir England |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 11 |
| Your message | I was diagnosed
with T.S last year and have just started taking Haloperidol. I love football and art. I am happy to know that there are so many other people like me.Hope someone will contact me. |
| 04/26/00 11:27:29 PM | |
| What is your name? | George Williams |
| Where are you from? | Bangor, N Ireland |
| Your message | Geoffrey, my son (12) has been diagnosed with TS and OCD. We have had great support from our local paediatrician, and also the TSA of Ireland, based in Dublin. If anyone wants contact information please email me. ( I will give tosy some info for the web-site) |
| 04/24/00 05:18:27 PM | |
| What is your name? | SHARON |
| Where are you from? | England |
| Would you like a cyber-penfriend? | no |
| Your message | I have a 8 year
old son called Joel who has just been diagnosed with TS the consultant seems to think it
is mild and does not require any medication has anyone out there had any information on
hypnotherapy and TS and if so could they let me know at the email address shown thanks Sharon & Joel |
| 04/24/00 01:32:09 AM | |
| What is your name? | Venie Hooper |
| Where are you from? | Australia |
| Your message | I am trying to obtain information on TS and related disorders, I am concerned about my 10 year old son who has ADHD, Autistic Spectrum Disorder, ODD, he has rage attacks, but his facination with all things of a sexual nature and his racist behaviour are of concern to me, I believe that there is a type of TS that has these problems, he is currently taking Ritalin, Lithium and Catapres but with little success. Nathan does not have tics but I also believe that not every TS sufferer does, is this correct? I am very concerned about my son and what the future holds for him. |
| 04/21/00 12:16:31 PM | |
| What is your name? | Emma |
| Where are you from? | Birmingham |
| Would you like a cyber-penfriend? | yes |
| If so, and you're under 20, how old are you? | 13 |
| Your message | Hi! I'm Emma. I'm glad I'm not the only one who's got TS. Sometimes my tics are noticeable and sometimes not. People tell me not to worry but sometimes I do. I've had a lot of help with my illness but would like to write to people who have the same problems as me. I don't have my own email address so I'm borrowing a friends - you can mail me there! |
| 04/21/00 03:32:59 AM | |
| What is your name? | Linda |
| Where are you from? | Halifax |
| Your message | Hi my name is Linda I have a 14year old daughter T.S,O.C.D,possibly A.D.H.D Diagnosed at 7 so if anybody just needs someone to talk to, it does help, and maybe my experiences could help in some way. |
| 04/19/00 03:43:16 AM | |
| What is your name? | TERESA |
| Where are you from? | CLEVELAND, TN |
| Would you like a cyber-penfriend? | YES |
| Your message | I AM ADULT THAT HAS LIVED WITH THIS FOR MANY YEARS BEFORE I FIGURED OUT WHAT I HAD, I THOUGHT IT WAS SOME STUPID NERVOUS HABIT I COULD CONTROL,FINDING OUT I COULD NOT CONTROL IT, IT HAS CONTROLLED MY LIFE. |
| 04/16/00 05:57:39 PM | |
| What is your name? | Tische Deakin |
| Where are you from? | Herne Bay in Kent |
| Your message | Hi, I'm Tische and I have a 17 year old son Keith with autistic spectrum disorder, Tourettes and complex learning and developmental disabilities, with a lot of obsessive-compulsive behaviour thrown in for seasoning! Would like to hear from anyone, but please be patient if I take ages to reply - I am chronically ill with M.E. |
| 04/16/00 05:54:06 AM | |
| What is your name? | Alison |
| Your message | I am a psychiatric nurse working with children, and currently look after a youngster with TS. I think this website is really useful and will be passing on the address to patients and parents alike! Is there any facility for any of the kids who I come into contact with to handwrite letters if they don't have computer access? |
| 04/13/00 08:36:09 PM | |
| What is your name? | Gemma |
| Where are you from? | Lincolnshire |
| Would you like a cyber-penfriend? | Very much so-please write to me! |
| If so, and you're under 20, how old are you? | 17 nearly 18 |
| Your message | Hi everyone out
there, This website was brilliant and very helpful. I was diagnosed with Tourettes Syndrome a few years a go, but the unfortunate thing is that no drugs seem to control it, so we are currently experimenting-it is such a pain. Thank you for doing this website, and I hope someone will write to me, lots of luv, Gemma |
| 04/11/00 08:05:50 PM | |
| What is your name? | Genna & Debbie Barnett |
| Where are you from? | Glasgow |
| Would you like a cyber-penfriend? | Absolutely |
| If so, and you're under 20, how old are you? | 9 |
| Your message | am Debbie (the Mum) Genna is my daughter, diagnosed with GTS last Summer after 3 years of uncertainty. I find it very comforting to know that there are others out there who understand what it is like. Thankfully Genna's symptoms are very mild but who knows what is ahead. |
| 04/07/00 09:10:30 AM | |
| What is your name? | Hugh Rickards |
| 04/06/00 10:52:26 PM | |
| What is your name? | Chris Watson |
| Where are you from? | Luton Beds |
| Your message | Excellent Web site
and great to be from UK. I have just sent you an email. At the moment we are weaning my son of Clondine which has been on for about 4 years. His tics have gone away (hopefully) and I think that being on the pills made him depressed. Also he has a very low opinion of himself but he is I think a fantastic kid who is very intelligent and been misunderstood for many years. |
| 04/06/00 03:25:30 PM | |
| What is your name? | Leanne |
| Where are you from? | Leeds (UK) |
| Would you like a cyber-penfriend? | ok |
| If so, and you're under 20, how old are you? | 17 |
| Your message | Hi erm dunno what to put apart from visit my site! |
| E-mail Website |
| 04/05/00 08:37:44 PM | |
| What is your name? | Mark Brown |
| Where are you from? | N.Ireland |
| Would you like a cyber-penfriend? | Definitely |
| If so, and you're under 20, how old are you? | 11 |
| Your message | Hi my name is Mark i have had TS now for almost 4 years. I am glad to know i am not the only one out there and i would really love to hear from other kids and we could have some fun on the net. hoping to hear from you soon Mark!!! |
| 04/03/00 07:37:25 PM | |
| What is your name? | Susan & David Jackson |
| Where are you from? | Blackpool |
| Would you like a cyber-penfriend? | possibly |
| Your message | Hello, we have a 12 year old boy with TS plus, and like everyone else have found it hard going at times. We are now getting there. Its nice to know that ther are others out there like us, and in the same country. Thanks tosy for this web site, and more thatnk to Lesley Packer for telling me you were here. |
| 03/30/00 09:10:24 PM | |
| What is your name? | Malcolm Worth |
| Where are you from? | Preston |
| Your message | Hi, My name is Malcolm and I have an 11 year old daughter who has (at the moment) mild Tourettes with a little OCB thrown in for good luck. Jenny was diagnosed in January this year but has shown symptoms for 3 or 4 years. If anyone would like to email me, please feel free. |
| 03/29/00 07:57:50 PM | |
| What is your name? | darren |
| Where are you from? | edinburgh |
| Would you like a cyber-penfriend? | yes please |
| If so, and you're under 20, how old are you? | 16 |
| Your message | ,hi my name is darren,darren wills, my head starts to twitch when i miss my pills ,yes my head starts to twitch and my leg begins to kick folk look away and say that nut,s sick |
| 03/27/00 07:01:05 PM | |
| What is your name? | Sue |
| Where are you from? | Bristol |
| Your message | I have a 13 year
old son who has T.S we found out when he was 11 years old althought his tics had been presant since he was around 4. He takes Haloperidal to control his tics. He enjoys playing the saxophone which helps him relax. |
| 03/26/00 06:21:53 PM | |
| What is your name? | Stephen |
| Where are you from? | Preston |
| Would you like a cyber-penfriend? | Yes |
| If so, and you're under 20, how old are you? | 14 |
| Your message | I'm not sure if I really want to do this, but I'm willing to give it a go.I was diagnosed with TS about 4 years ago. |
| 03/26/00 05:57:16 PM | |
| What is your name? | Hannah Anthony |
| Where are you from? | LINCOLNSHIRE |
| Would you like a cyber-penfriend? | Yes |
| If so, and you're under 20, how old are you? | AGE 9 |
| Your message | I am 9 years old and have GTS and OCD.I would like someone with Tourettes to write to .My mummy says that any other mums who would like someone to write to are welcome to contact her as well. Love Hannah |
| 03/26/00 10:19:32 AM | |
| What is your name? | Jane or Harassed Mum |
| Where are you from? | I'm from Stevenage, in Hertfordshire |
| Your message | Hi I'm a mum whose daughter has TS, I found out about 2 years ago. Over the last 2 years I have communicated with many people regarding TS, I know all the fears and worries, especially the one of just wanting to talk to someone who understands, so if somebody just wants a chat or is at their wits end and needs a helping hand please feel free to email me. It is fantastic that tosy has now set up a site for people in the UK, although I am greatful to everyone on the US/Aust/Canada sites it is much better to be able to speak to somebody of your own culture - well done tosy - let's hope many more "tune in" to your site. |
| 03/24/00 11:02:38 PM | |
| What is your name? | tosy |
| Your message | Welcome to the
Guestbook! I'd like it also to be used as an E-Mail Directory - If you'd like a
cyber-penfriend, please leave details of yourself and whether you'd like to contact
someone of a similar age etc. If you prefer to keep your e-mail address private - post your name and message, and use the following e-mail address: "yourname"@tourettesyndrome.co.uk Don't forget to send me an e-mail telling me your own e-mail address to send any replies! Best wishes tosy PS "Private" posts can only be read by me. |
| E-mail Website |